Evaluation and Research
There is no cure for FASD. It is lifelong disability. A child with FASD grows up to be an adult with FASD. Individuals with FASD may require extensive support and services related to health, mental health, social services, education and training, justice, addictions, and family supports throughout their lives. Ongoing research and evaluation of programs will help to determine best practices for preventing FASD and supporting those already affected.
Children who have an alcohol-related birth defect have difficulty understanding how their actions affect outcomes. Many do not learn from past experience. This makes their behaviour unpredictable and can also make them vulnerable to high risk behaviours and situations. Research has shown that a significant number of individuals in the criminal justice system have been pre-natally exposed to alcohol.
Experts know that if a mother gives birth to one child with FASD, and continues to drink, she is at very high risk of giving birth to another. Research is being underway to identify intervention strategies to be developed within communities that are sensitive to the people receiving these services.
Research underway through the Alberta Centre for Child, Family and Community Research:
Research underway through AADAC:
Canada FASD Research Network
The Canada Fetal Alcohol Spectrum Disorder Research Network (CanFASD) is a collaborative, interdisciplinary research network, with collaborators, researchers and partners across the nation. It is Canada’s first comprehensive national FASD research network and started as an alliance of seven jurisdictions and operated for seven years as the Canada Northwest FASD Research Network.
CanFASD’s unique partnership brings together many scientific viewpoints to address complexities of FASD, with a focus of ensuring that research knowledge is translated to community and policy action. Its mission is to produce and maintain national, collaborative research designed for sharing with all Canadians, leading to prevention strategies and improved support services for people affected by FASD.